Community

Community

To educate the UCLA community about rare diseases, The Center will run a seminar series that will bring junior rising stars and senior leaders to campus for 1-2 day visits. The visits with local faculty, lunch with students and postdocs, and dinner with faculty will be modeled after other seminar series. The visit will culminate in a seminar. We will start with 4 lectures per year in the first year and 6 lectures per year in subsequent years.

To advocate in the community for primary immunodeficiency patients, The Center will champion various advocacy groups that service Los Angeles and Calfiornia, broadly. The Center will host tables and booths, sponsor educational seminars for patients and activities to encourage patients to meet and help each other, encourage near-campus gatherings of patients and families with fellows and faculty, Q&A days, barbeques, and sporting events. Specifically, the Center will support administratively the mass mailings to patients, families, and other stakeholders that are needed for events.