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Join us for Rare Disease Day

February 9, 2022 rarediswebuser

February 25th 2022 1-3pm via zoom Registration is free, you must RSVP to receive link to the event. https://web.cvent.com/event/79809df7-110e-4bf2-8a5c-

NIH Funds Clinical Trials Using Genomics to Treat Chronic Diseases

July 3, 2019 rarediswebuser

The National Institutes of Health will fund clinical trials to assess the benefits, applicability and efficacy of applying genomic medicine interventions to improve management of diseases such as high blood pressure, depression and chronic pain. The trials are part of Read More …

Network of Doctors Tries to Solve Medical Mysteries

March 7, 2019June 29, 2020 rarediswebuser

Network of Doctors Tries to Solve Medical Mysteries Important work is being done on behalf of patients with undiagnosed diseases. The following link below highlights the notable efforts of Dr. Stanley Nelson, Director of the California Center for Rare Diseases Read More …

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  • Join us for Rare Disease Day
  • NIH Funds Clinical Trials Using Genomics to Treat Chronic Diseases
  • Network of Doctors Tries to Solve Medical Mysteries

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Inaugural Rare Disease Day 2021

https://www.youtube.com/watch?v=Bzf__UnXgYs

Patient Stories 2021

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